Families with children managing a chronic illness or disability report their greatest stress comes from arranging numerous services through multiple agencies. Building Healthier America is building a national network to support families within their home communities so they can better navigate the medical, educational, and human services systems...improving quality of life for the entire family.
Families whose children have a chronic illness or disability must interact with at least three huge and often intimidating bureaucracies: the medical system, the educational system, and the local human services system. Unfortunately it’s rare the three share basic information let alone collaborate on behalf of the child.
Building Healthier America is creating a solution by developing a community network at the local level for families to tap into, sharing information and resources to help streamline the process.
Building Healthier America is about inclusivity, not exclusivity. There are some organizations that focus on particular categories of illness or disability. Our purpose is to serve all – including families with adult-age children.
Families managing children with diabetes, cancer, Down yndrome, cystic fibrosis, sensory impairment, blindness, mental health concerns, muscular dystrophy, cerebral palsy, autism, neurological disorders, congenital heart disease, sickle cell anemia, asthma, and any other chronic illness or disability depending on the local populations and conditions will be served by the program framework developed which captures the strength, positivity, and power of family.
Our mission is to serve as a central community resource for families as they navigate the medical, human service, educational and local agencies serving children with chronic illness or disability.
We are launching pilot sites in Tucson, Arizona and Hudson, Wisconsin. We are actively seeking families managing children of any age with chronic illness or disability in these communities to help us develop and build our network of services. To learn more about what we have planned, click on the link below.
Building Healthier America is just getting started. As a 501(c)(3) your donation is tax deductible…and every gift helps. Please consider providing support for our national campaign.
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The needs of families are not just medical, educational, or human services related. Stress management, mental health services, employment considerations for parents, clothing needs, claims processing, changes to the physical structure of the home are all services families need.
Our programs are being built from the ground up by families living with chronic illness and disability. It’s exciting! And offers an opportunity to customize networks community by community.
Our News consists of the latest happenings at Building Healthier America as well as relevant articles and information from others serving families with chronic illness or disability. We hope you find it helpful, and do connect with us if you have information you'd like shared. We want to hear from you!
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